I think the escapology was the last, final, impossible straw for me. That and the lack of sleep. I’d like to make every politician have to spend just One Day as a dementia carer. All my best wishes to you. It is indeed a grim road xx
Oh bless you, mine is horrendous at twiddling with things, they are either on or off but not what they should be. The heating mainly and if I'm not quick enough the heating goes up enough to blow the national grid and grow exotic plants x
You may already have these but you can use luggage trackers to check where James is. These are discs you can attach/hide in his clothing and you link them to your phone. Also you can have your door fitted with an alarm if James tries to leave and a camera. Apologies if you are already using these. Wishing you the best. This journey is hellish. X
Just imagine how behaviour along these lines would be handled in a care home - and how many folk there are that behave like this. It is only from storytellers like Georgina that we realise the overall effects that dementia can have on the life style of a family. Thank you.
I'm so sorry. You almost have to childproof your home. My mom tends to hide things. Some are important things, which is bad if you can't find the electric bill. Some are not importatnt, like a 10 lb. bag of rice mom "disappeared" a couple of years ago. We still haven't found it despite industrious searching. She is a master of her craft.
Here is a tip for anyone living with a dementia sufferer: If you have not already, and if your cooking range has removable knobs, think about taking them off and hiding them until you need to use a burner. My dad neglected to put the knob of the one burner he uses into hiding and mom decided she needed to reheat coffee from a glass coffee carafe on the burner. I'm not sure how she knew to turn it on, but you can imagine the results when she did.
I feel for you. I feel for anyone who provides care 24/7. XX
What about when they try to be independent and put the leftovers back in the refrigerator only to mix it with foods that are not alike but might look alike! I finally get why some refrigerators have locks on them!
My husband has just moved from the occasional bout of confusion to permanent confusion, it feels relentless, having to direct home how to do everything, whether it's eating, drinking, walking, using the loo. I used to have a couple of weeks between bouts but from Sunday last week he's stayed confused. It is eo heartbreaking to see him disappear into this state.
It's a different ballgame you're playing than was my story. My mom was at your husband's cognitive state when she was 95. She was still ambulatory and tried to go out into the garage (two big steps downward) and muddle around and feed the precious cats and clean their box - I remember the tense moments when she bent over to do these things, as I hovered above her ready to grab her around the middle if necessary. But she was not able to attempt such an undertaking as leaving by the front door. -prayers-
I think the escapology was the last, final, impossible straw for me. That and the lack of sleep. I’d like to make every politician have to spend just One Day as a dementia carer. All my best wishes to you. It is indeed a grim road xx
Oh bless you, mine is horrendous at twiddling with things, they are either on or off but not what they should be. The heating mainly and if I'm not quick enough the heating goes up enough to blow the national grid and grow exotic plants x
You may already have these but you can use luggage trackers to check where James is. These are discs you can attach/hide in his clothing and you link them to your phone. Also you can have your door fitted with an alarm if James tries to leave and a camera. Apologies if you are already using these. Wishing you the best. This journey is hellish. X
Just imagine how behaviour along these lines would be handled in a care home - and how many folk there are that behave like this. It is only from storytellers like Georgina that we realise the overall effects that dementia can have on the life style of a family. Thank you.
I take care of my mom with Alzheimer’s. She is not a wanderer, but that is one line that if crossed, I will need to find her care outside my home.
I want you to know your pain is heard and shared. Thank you for sharing your stories. They help me to keep going.
I'm so sorry. You almost have to childproof your home. My mom tends to hide things. Some are important things, which is bad if you can't find the electric bill. Some are not importatnt, like a 10 lb. bag of rice mom "disappeared" a couple of years ago. We still haven't found it despite industrious searching. She is a master of her craft.
Here is a tip for anyone living with a dementia sufferer: If you have not already, and if your cooking range has removable knobs, think about taking them off and hiding them until you need to use a burner. My dad neglected to put the knob of the one burner he uses into hiding and mom decided she needed to reheat coffee from a glass coffee carafe on the burner. I'm not sure how she knew to turn it on, but you can imagine the results when she did.
I feel for you. I feel for anyone who provides care 24/7. XX
What about when they try to be independent and put the leftovers back in the refrigerator only to mix it with foods that are not alike but might look alike! I finally get why some refrigerators have locks on them!
My husband has just moved from the occasional bout of confusion to permanent confusion, it feels relentless, having to direct home how to do everything, whether it's eating, drinking, walking, using the loo. I used to have a couple of weeks between bouts but from Sunday last week he's stayed confused. It is eo heartbreaking to see him disappear into this state.
I wish I could help, but I’m across the pond. I hope you find a way through this that is the best possible situation for both you and James.
It's a different ballgame you're playing than was my story. My mom was at your husband's cognitive state when she was 95. She was still ambulatory and tried to go out into the garage (two big steps downward) and muddle around and feed the precious cats and clean their box - I remember the tense moments when she bent over to do these things, as I hovered above her ready to grab her around the middle if necessary. But she was not able to attempt such an undertaking as leaving by the front door. -prayers-